The Stroke Network

Newsletter )
 Lin Wisman, Editor, LWisman@strokenetwork.org November 2002 
In this issue...
  • Organization Highlights, by Steve Mallory
  • Life in New Zealand with a Stroke, by David G. Ray
  • Book Review: A Stroke of Genius, by Lin Wisman
  • Stroke Research and AT Survey Invitation
  • Website: Harlan Stockman
  • Website Review, by Barbara Layne
  • Notices
  • Bios: Bobbie Hall and Michael Roberts
  • About Us

  • Welcome to the November 2002 edition of StrokeNet. We hope you discover information you can use. In addition to regular columns by Steve Mallory, David Ray and Barbara Layne, find a book review, an invitation to participate in a survey on Assistive Technology and a link to the website of stroke survivor Harlan Stockman. In the notices section find an announcement of an Aphasia documentary exhibit, announcement of a change of dates for the Rehabilitation and Technology seminar, the introduction of a new government website and an article about a rehabilitation center 30 year celebration including the volunteer efforts of stroke survivor John Stokes. Bios this month are of Bobbie Hall and Michael Roberts.

    Each month StrokeNet publishes member Biographies. We would like to hear from you. Readers appreciate and are encouraged by reading the stories of stroke survivors. Please send your bio (maximum 1000 words) and picture (not required by appreciated) to lwisman@strokenetwork.org.

    Organization Highlights, by Steve Mallory

    Steve announces the need for members of the Board of Directors and other volunteers. He also reports on the initiation of a Stoke Caregivers Committee. Please be sure to contact him if you can help personally or know of someone else who could be of assistance.

    The golf tournament fundraiser was held successfully in October. It helped to insure the future of the network. Steve recently upgraded to Windows 2000. More importantly he shares info on his new head pointer and keyboard. Be sure to investigate! Finally he reminds us of the current Assistive Technology Chat Series.

    Read Steve's Remarks...

     

    Life in New Zealand with a Stroke, by David G. Ray
    This month David reports on two stroke club meetings. During the first members had the opportunity to exercise muscles and brains with assorted exercises. The second was a birthday party for the stroke club with singers. David then gives the update on yachting, which he promised in October.

     

     

     

    David's Article... »

     

    Book Review: A Stroke of Genius, by Lin Wisman
    Read a review of the book "A Stroke of Genius" by Sandy Simon. Sandy's stroke happened in 1993. In his book he is able to help non-stroke survivors understand the experience of having a stroke. He provides stories to which other stroke survivors can relate.

     

     

     

    Book Review... »

     

    Stroke Research and AT Survey Invitation
    All stroke survivors are invited to take a short survey, which documents assistive technology devises used in rehabilitation. Dr. Laura Cushman, who is part of the team conducting this survey, is on the expert panel for the Stroke Network.

     

     

     

    The Survey... »

     

    Website: Harlan Stockman
    Harlan Stockman is a reader who suffered an ischemic brain stem stroke in March of 2002. The suspected cause was a patent foramen ovale (PFO) or a hole in his heart. The web pages include an explanation of PFO's as well as description and pictures of exercises he has used particularly to improve hand use and balance. He includes other pictures and reflections on his recovery so far. It's a good story to read. We wish him lots of luck.

     

     

     

    Harlan's Website... »

     

    Website Review, by Barbara Layne
    Barbara reviews the website of The Brain Coalition, http://www.stroke-site.org/.

    The coalition consists of professional, voluntary and government organizations dedicated to reducing the disabilities and even death caused by stroke This site has a number of interesting sections, both for survivors and their families and for medical personnel. It includes links to various tools for assessing strokes.

     

     

    Website Review... »

     

    Notices
    "Picturing Aphasia," a documentary will be exhibited in New York City on Nov 11 - 22. Innovative Speech Therapy has postponed their Rehabilitation and Technology Seminar. It will be held March 7, 2003.

    Read about a new US government website, http://www.disabilityinfo.gov/, aimed at those with disabilities. It provides a lot of great info. Finally, StrokeNet reader John Stokes shares an article about a celebration at his local rehabilitation hospital.

     

     

    Notices... »

     

    Bios: Bobbie Hall and Michael Roberts
    Bobbie Hall experienced her stroke in 1998 at the age of 57. In her bio she describes the progress she has made toward independence. She especially enjoys "getting out and doing things and going places."

    Michael Roberts is a regular contributor to StrokeNet. He includes not only his story, but a short poem and a link to his webpages.

     

     

    Bios... »

     

    About Us
    What is The Stroke Network? Where did it come from? Who are the people that work there? Read the FAQ if you would like to know.

    Just with is FAQ? I've seen it on the Internet several times but I've never understood what it stood for. What is FAQ and why does our organization have these letters? FAQ is an acronym for Frequently Asked Questions. It's basically questions that most people are going to ask if they want to know about your web site and service.

    Our organization has a FAQ in order to give you some background information and insight into our organization. The FAQ is linked from virtually every single page on our whole web site. If you scroll down the page and look on the left column you will see a button with a question mark. Click on the button and you will be hyperlinked to our FAQ web page.

    You will learn about the formation of our organization and it's history. You can find out who are our partners and learn about our basic policies. Most of the frequently asked questions can be found here but if you have more please let us know.

    About Us »

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         email: SMallory@strokenetwork.org
         voice: 410-569-1272
         web: http://www.strokenetwork.org/