The Stroke Network, Inc.

Newsletter )
 Lin Wisman, Editor, LWisman@strokenet.biz November 2004 
In this issue...
  • Organization Highlights, By Steve Mallory
  • Life In New Zealand with a Stroke, By David Ray
  • Active Forever
  • Concrete Change
  • Stroke Article Newsfeed, By Jean Googenheimer  
  • Website Review, By Janice Rodriguez
  • November Birthdays
  • Bio: Julie Burdyshaw
  • Our Organization

  • Welcome to the November 2004 issue of StrokeNet. Steve Mallory discusses changes to the message board and chat room, recognizes members and talks of future plans. David Ray reports on two birthday celebrations. Members attention is drawn to the Active Forever website, which has items available to aid stroke survivors. Concrete Change, an organization which provides information on accessible housing, is described.

    Jean Googenheimer reviews three sstroke articles, which appeared this month. Janice Rodriguez reviews websites which provide stroke survivor education. November birthdays, which are in the member database, are listed. The only new bio this month belongs to Julie Burdyshaw.

    Organization Highlights, By Steve Mallory

    Steve opens his report this month by discussing changes to the message board and chat room. He encourages all to participate in chat. Steve gives special recognition to several members, including those who have become official mentors. He then talks about encouraging local hospitals to recognize The Stroke Network. Finally he speaks of Computer Therapy as an outreach program.

    Read Steve's Remarks...

     

    Life In New Zealand with a Stroke, By David Ray
    David reports on two birthday celebrations. A friend of his turned 70 and the Lower Hutt stroke Club celebrated its 23rd.

     

     

     

    Life in New Zealand... »

     

    Active Forever
    The Stroke Network Information web page includes a link to the company Active Forever. They provide an assortment of products, which solve stroke survivor problems. This article describes what is available on their website, http://www.activeforever.com.

     

     

     

    Active Forever... »

     

    Concrete Change
    An interesting website has been brought to the attention of StrokeNet. Concrete Change at http://www.concretechange.org provides information to aid those building a new home or redesigning their home to increase visit-ability, to increase accessibility.

    From their website: "To change that reality, three essentials can become routine: 1. One ZERO-STEP entrance; 2. All main floor interior doors--including bathrooms-- with 32 inches of clear passage space; 3. At least a half bath, preferably a full bath, on the main floor.

    In other words, get in and out of the house and be able to use the bathroom--the essentials for visiting, and for surviving in your house with a temporary or long-term disability."

    They provide a handout which can be used to promote accessible housing.

    Concrete Change Handout... »

     

    Stroke Article Newsfeed, By Jean Googenheimer
    This month Jean reviews three articles. The first is on restoring vision following stroke. The second is about a study which indicates MRI's give more info following stroke than the more commonly used CT scan. Finally she provides a link to the recent speech given by Dana Reeve.

     

     

     

    Newsfeed Review... »

     

    Website Review, By Janice Rodriguez
    The topic, which Janice chose to cover this month, is stroke survivors. She reviews several sites, which provide survivor education.

     

     

     

    Website Review... »

     

    November Birthdays
    The following Stroke Network members are celebrating their birthdays in November. The Stroke Network sends birthday greetings to all of these members.

    1st TLShark (38) Il.Tammy is a caregiver; 5th Lainy (23) Ks. She stroked in April 2004. Lainy enjoys swimming, reading, movies, and reality TV; 9th Anniebarb (60) Ca. Barbara stroked Mary 1997. She is a Social Security and SSI disability advocate; 9th Cyndip (39) Ar. Cyndip is caregiver for her mom. She enjoys NASCAR and antiques. 11th rstalnecker (47) Pa. A survivor since October 2001, rstalnecker enjoys classical rock and science fiction; 14th oldwoman (44) Tx. Debbie stroked in 1998. She lists her interests as TV, computer, and feeding fish in the pond; 16th Debbi (47) Ga. She is a survivor since Nov 2003. 23rd Cinder (38) In. Cindar is a caregiver to her father and enjoys creating and inventing reading, mowing 4 acres, and taking care of her dogs;

    26th PerryS (46) Ky. Perry Stevens stroked on Christmas Day 2000. He stays connected to the world through his computer. He enjoys TV, and church. His wife and he created a web page. He keeps a journal, which he used to help write a book, "I'd Like to Return this Gift," which was recently published; 27th Vickie (53) Il. Vickie is a caregiver to her father who had a stroke July 2000. She lists her interests as bird watching/feeding, reading, travel, and antiques. 27th trubrat98 (33) NJ. Trubrat is a caregiver. The mother had the stroke. Trubrat lists interests as 5 ferrets, 2 cats and 3 dogs; 28th Lin (54) Il. Lin Wisman is the editor of this newsletter and is Director Information Resources for The Stroke Network. She had a brainstem stroke March 6, 1997. Lin enjoys reading, computer work, cooking and caring for her cat, Cleopatra.

    To be sure your birthday is included on the list of member birthdays, add the date to your profile. From the home page of the Message Board, select 'My Controls', on the left hand side of the screen look for the category 'Personal Profile.' Select 'Edit Profile.'

    Message Board... »

     

    Bio: Julie Burdyshaw
    Julie Burdyshaw stroked 21 years ago. Click to read what she has to say about it and to see a photo which includes her daughter.

     

    Bios can be entered by members or sent to the editor. Instructions for entering the bio for members: From the Members Bio page: 1) Click the button at the top 'New Image'; 2) Enter the following data:A) Caption: your name; B) Large text box: Enter the bio; C) Upload photo: At the bottom of the page upload your picture from your computer; 3) Save

    If you do not have a digital photo contact the editor at the address at the top of this newsletter. She can send you a snail mail address where you can send a paper photo to be scanned.

    Bios... »

     

    Our Organization
    What is The Stroke Network? Where did it come from? Who are the people that work there? Read the FAQ if you would like to know.

    Just what is FAQ? I've seen it on the Internet several times but I've never understood what it stood for. What is FAQ and why does our organization have these letters? FAQ is an acronym for Frequently Asked Questions. It's basically questions that most people are going to ask if they want to know about your web site and service.

    Our organization has a FAQ in order to give you some background information and insight into our organization. The FAQ is linked from virtually every single page on our whole web site. If you scroll down the page and look on the left column you will see a button with a question mark. Click on the button and you will be hyperlinked to our FAQ web page.

    You will learn about the formation of our organization and it's history. You can find out who are our partners and learn about our basic policies. Most of the frequently asked questions can be found here but if you have more please let us know. The print version of this newsletter is available at the website. Contents of this newsletter may not otherwise be reprinted without the organization's permission. Please contact the editor.

    Frequently Asked Questions »

     

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         email: smallory@strokenet.biz
         voice: 410-569-1272
         web: http://www.strokenetwork.org/
     

    The Stroke Network, Inc · P.O. Box 492 · Abingdon · MD · 21009