Description: Description: Description: Description: StrokeNet Logo

 

StrokeNet Newsletter

 

StrokeNet Newsletter Staff  

Lin Wisman, Editor  Walt Kilcullen
Erin and JJ Robertson
Jim Sinclair
Deb Theriault
Teri Truax
Claudia Warner
David Wasielewski

 

 

Join Our List

Description: Description: Description: Description: Join Our Mailing List

Vol 12, No 8         

August 2012

 

Greetings,

It's August. Celebrate the dog days of summer by reading some stroke stories. There are three in this issue of StrokeNet.

 

●  Staff Spotlight features Marie Claire Dube

●  Milestones is a reflection of fifteen years of stroke recovery

  Stories of Stroke Recovery shares a website.

 

Also in this issue:

 

In Organization Highlights Maria challenges each of us. In Stroke Treatment and Recovery read about stroke therapies not yet a part of traditional stroke therapy. The Juggling Caregiver tackles the issue of Controlling Seizures. Speak No Evil raises the issue of Alternative Medicine.  

 

Dancing with Stroke explores peer support. "The Teaching of Talking" is reviewed. Ten Ways.. discusses ways to make a doctor's appointment more worthwhile. Be sure to check out Member Celebration to see who has registered their birthday or stroke anniversary for August.

 

Enjoy the August newsletter!  

  

Lin Wisman

Director Information Resources

Editor, StrokeNet
lwisman@strokenetwork.org

 

Organization Highlights

Description: Description: Description: Description: wheelchair2What's Happening
By Maria Erichsen
Operations Manager

This month Maria challenges stroke survivors to be their best. Attitude makes all the difference!

 
Click Icon to Read Article


Contact Maria at merichsen@strokenetwork.org

 

Stroke Treatment and Recovery  

Description: Description: Description: Description: http://www.strokenetwork.org/newsletter/images/therapy.gif

New Research and Technologies 

By David Wasielewski

 

David highlights five therapies, which are not part of standard stroke therapy, but which show promise. 

 

They are Merci Clot Retrieving Device, Stem Cell Therapy, Telestroke Programs, Intrathecal Etanercept, and Myomo Robotic Therapy.

 

StrokeNet has published articles on four of these in earlier issues. Links are at the bottom of David's article to the earlier articles.

 

Could any of these help your situation?

  

Click Icon to Read Article  

 

Contact David at  

dwasielewski@strokenetwork.org



 

The Juggling Caregiver

Description: Description: Description: Description: JugglerControlling Seizures

By Claudia Warner

   

Claudia and Wes have had lots of experiences with seizures since Wes' stroke. In this article she offers some advise.

     

Click Icon to Read Article

 
Contact Claudia at cwarner@strokenetwork.org   

 

 

Speak No Evil

Description: Description: Description: Description: http://www.strokenetwork.org/newsletter/images/monkey.gifIncorporating Alternative Medicine
By Erin and J.J. Robertson

Many stroke survivors seek Alternative Medicine to augment traditional therapy. The Robertson's are just beginning to look at and try out alternatives.

   

Click Icon to Read Article

Contact Erin and J.J. at 

erobertson@strokenetwork.org

 

Dancing with Stroke

Description: Description: Description: Description: http://www.strokenetwork.org/newsletter/images/dance.gifPeer Support 

by Jim Sinclair

 

Jim was very lucky to have peer support from the beginning during his journey with stroke recovery. Read about his experience and reflect on how peer support has helped you and how you have helped others.

 

Click Icon to Read Article 

 
Contact Jim at jsinclair@strokenetwork.org 

 

 

Book Review

Description: Description: Description: Description: http://www.strokenetwork.org/newsletter/images/ittleman.gifThe Teaching of Talking

By Mark A. Ittleman, MS.,CCC/SLP

Reviewed by Claudia Warner, Caregiver

 

 "The Teaching of Talking" by Mark Ittleman is designed to take up where therapy leaves off. Claudia gives her take on who might find it of help.

 

Click Icon to Read Article 

 

Contact Claudia at cwarner@strokenetwork.org 

 

 

Ten Ways...

Ten Ways to Get the Most Out of Your Doctor Description: Description: Description: Description: http://www.strokenetwork.org/newsletter/images/ten.gifAppointment

By Deb Theriault

 

Doctor's visits can be disappointing. It is sometimes hard to remember all the things you wanted to ask. It is sometimes even difficult to get there! Deb shares ten ways to get the most out of the appointment.

 

Click Icon to Read Article

 

Contact Deb at dtheriault@strokenetwork.org

 

 

Milestones

Description: Description: Description: Description: http://www.strokenetwork.org/newsletter/images/climb.gifBy Julie Fox Garrison

 

Julie, who is a member of The Stroke Network, sent this reflection on her recent 15th Stroke Anniversary. There is lots of life after stroke!

 

Click Icon to Read Article

 

Stories of Stroke Recovery

Barbara Collard

Description: Description: Description: Description: http://www.strokenetwork.org/newsletter/images/recovery.gif

Even under the most challenging odds, patients can make remarkable, unexpected recoveries. 

 

Barbara Collard is one such patient. After suffering a severe stroke in July 2008, she has made a recovery that would astound even the most seasoned of physicians. 

 

Collard suffered a serious brain stem stroke, a deadly condition that affects the blood supply to areas of the brain vital to the body's basic life support functions. Initial scans had indicated that this part of her brain was severely damaged, but some patients can recover neurologic function in the part of the brain if blood flow is re-established quickly. 

Collard's seemingly miraculous recovery reminds physicians that standard protocols of therapy must be viewed in combination with individual patient circumstances.   

 

Read more on Mass General Website

 

Staff Spotlight

Description: Description: Description: Description: http://www.strokenetwork.org/newsletter/spotlight/mcdube.jpgMarie Claire Dube
Coordinated by Deb Theriault 

Staff Spotlight is Marie Claire Dube, the Stroke Network's "Welcome Letter Administrator, Chat Host and "Chief Mentor" in the Forums. Marie Claire is a stroke survivor who lives in Canada.

 

Be sure to check out what you don't know about Marie Claire.

  

Click Picture to Read Article.

 

Contact Marie Claire through her username, mcdube, on the Message Board. 

 

Contact Deb at dtheriault@strokenetwork.org

 


"Staff Spotlight" is a recurring feature that showcases the Stroke Network's terrific volunteer staff. 

 

Member Stories

Description: Description: Description: Description: http://www.strokenetwork.org/newsletter/images/stickfigure.gifWhere are they??

For those who want to know, we have not discontinued Members Stories. Please contact Deb Theriault

to have yours included!! 

 

Here is the skinny:

 

Would you like to have your story featured?  Member Stories are written with the help of our Member Stories Administrator, Deb Theriault.  

First, read the Member Stories Guidelines for more info on the program. Then, click Member Stories Permanent Collection to see the stories which have been published.


If you are still interested e-mail Deb at dtheriault@strokenetwork.org.  

In lieu of a Member Story, members can add their own stroke experiences to the Bios section of The Gallery or start a new blog on the Stroke Network.  These are unedited and are not featured in the newsletter.

 

 

 

Member Celebrations

Description: Description: Description: Description: Lightning BoltBirthdays and Stroke
Anniversaries

Compiled By Teri Truax

The Stroke Network congratulates all members who celebrate a birthday or stroke anniversary this month. Click below to see the birthdays and anniversaries we have on file for this month.

Click Icon to Read Article

Contact Teri at ttruax@strokenetwork.org


Each month members' birthdays and Stroke Anniversaries, which they have placed in their message board profile, are listed in the newsletter.

Be sure your birthday and stroke anniversary are in your profile. From the home page of the Message Board, click the arrow next to your user id. From the drop down menu select My Settings.

 

 

 

Copyright © August 2012
  The Stroke Network, Inc.
  P.O. Box 492 Abingdon, Maryland 21009
  All rights reserved.


Contents may not be reprinted without the organization's permission. Please contact the editor.

 To submit an article email the editor.     

 
Disclaimer

This newsletter is published and owned by The Stroke Network. The items contained herein are published as submitted and are provided for general information purposes only. This information should not be considered as personal advice.
 
Readers should not rely solely on our newsletter information, but should make their own inquiries before making any decisions. The Stroke Network works to maintain up-to-date information from reliable sources; however, no responsibility is accepted for any errors or omissions or results of any actions based upon this information. If you have any questions regarding any of these items, contact the newsletter editor.
 
This newsletter may contain links to websites that are created and maintained by other organizations. The Stroke Network does not necessarily endorse the views expressed on these websites, nor does it guarantee the accuracy or completeness of any information presented there.

 


 

The Stroke Network, Inc., P.O. Box 492,  Abingdon, MD  21009